View Full Version : Update on my sickness

04-17-2009, 01:20 AM
Some of you already know I have been sick since last fall.
Now it has come to the point I can hardly walk or do anything that needs muscles.
To get myself dressed in the morning takes a lot of time, to go to the toilet is a big problem.
I move along the walls for a couple of hours until the stiffness has reduced.
And I have now diagnosed myself with Polymyalgia Rheumatica .....:wink:

Anyway - I finally got thoroughly tested and my Sed rate (ESR) is 64, CRP 22 and my Hemoglobin has lowed from 136 to 112 in 3 months. I also got a referral to a rheumatologist and I have an appointment Monday April 20.
I hope they will find out what is wrong with me cause I cannot bear the thought I will be this sick the rest of my life.
Fibromyalgia was the first diagnose I got, but I dont think that is the case with such high numbers in the tests.

My mind is much more positive now when I finally know I will see a specialist.
My body is the same though.....dont want to co-operate with me at all....:no:

Just thought i would explain my MIA.
Have a nice weekend everyone.

04-17-2009, 04:25 AM
Well I hope they figure it out so you can get better. Hopefully it will be something they can take care of. Keeping you in my thoughts!

04-17-2009, 04:52 AM
Bless your heart Carola....! I hope that the hold this has on your body will loosen up so you will be free-er to live your life! Will be thinking of you!

04-17-2009, 04:55 AM
Carola, hope they figure it out and that there is something out there that will help you, especially with the pain. I'll keep you in my thoughts and prayers.

04-17-2009, 05:04 AM
you will be in my prayers daily.

Dani Alencar
04-17-2009, 06:31 AM
oh, Carola I'm so sorry to hear that... I'll pray for you. Best wishes!

04-17-2009, 07:11 AM
I sure do hope that the docs figure out something to make your quality of life better...Sorry to hear that your body is so non-cooperative-I hope you have brighter days ahead

04-17-2009, 07:21 AM
I hope and pray that you'll have some relief soon. You'll be in my prayers.

04-17-2009, 07:49 AM
I hope that you are better very soon. Thinking of you.

04-17-2009, 08:18 AM
I sure hope you get feeling better. A good doctor makes all the difference. I'll be praying for you!

04-17-2009, 08:26 AM
I sure hope this doctor can determine what is wrong and get you to feeling better soon. You are in my thoughts and prayers.

04-17-2009, 09:26 AM
I will be thinking of you, and you have my prayers.

04-17-2009, 11:22 AM
Carola, so sorry to hear about your very debilitating symptoms. Very distressing! I do so hope that the specialists find out what the cause of all your pain is so as they can start with the correct medication and treatment. Sending you healing light and prayers. Thanks for letting us know and please keep us updated.

04-17-2009, 11:35 AM
My thoughts and prayers are with you. Hope the specialist will be able to get to the bottom of this and can help to find you some relief soon.

04-17-2009, 12:28 PM
I'm saying a prayer for you that you'll soon be well and have your strength back.

04-17-2009, 01:03 PM
Oh, hun, I'm so sorry you've been having such a hard time. Hopefully now that you know what the problem is you are on your way to recovery.

I will be keeping you in my prayers.


04-17-2009, 05:24 PM
It's horrible you have to go through this, and I'm amazed that you are able to do as much as you do for us and the GDS site in general. How commendable! I wish for you all the best the doctors can do to improve your health and get you to feeling better.

04-17-2009, 05:32 PM
I hope you get some relief, soon and the specialist can give you some of the answers you need.
You are in my thoughts!

04-17-2009, 08:51 PM
I hope the specialist can help you, you're in my thoughts and prayers Carola!!

04-17-2009, 09:00 PM
I'll be praying for you.